Who treats relapsing polychondritis?
Who treats relapsing polychondritis?
Cardiologists, neurologists, nephrologists, and otolaryngologists may be asked to manage other aspects of relapsing polychondritis. Plastic surgeons can aid in nasal reconstruction if saddle-nose deformity is present.
What are the symptoms of Polychondritis?
Signs & Symptoms Symptoms of relapsing polychondritis usually begin with the sudden onset of pain, tenderness and swelling of the cartilage of one or both ears. This inflammation may spread to the fleshy portion of the outer ear causing it to narrow. Attacks may last several days to weeks before subsiding.
How old do you have to be to have polychondritis?
The Relapsing Polychondritis (RP) Foundation and Race for RP are pleased to support the NIAMS survey, given it will help develop classification criteria and hopefully facilitate timely diagnosis. The NIAMS survey is for RP patients who are at least 18 years old. Your responses are voluntary and confidential.
What kind of disease is relapsing polychondritis ( RP )?
Relapsing polychondritis (RP) is a systemic inflammatory disease of unknown etiology that can be fatal. The disease affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain. If playback doesn’t begin shortly, try restarting your device.
How can I help people with relapsing polychondritis?
The Relapsing Polychondritis Foundation offers information about the disease, helpful contacts, links to our support groups, as well as information about upcoming autoimmune disease events and fundraisers. Support Relapsing Polychondritis (RP) research and those affected by this autoimmune disorder by making a donation today.
Can a person with relapsing polychondritis have a family member?
[4] [6] Relapsing polychondritis (RP) is not passed through families in a clear-cut fashion. Most people with relapsing polychondritis do not have affected relatives. [6]
Is there an autoimmune registry for polychondritis?
The Autoimmune Registry supports research for Relapsing polychondritis by collecting information about patients with this and other autoimmune diseases. You can join the registry to share your information with researchers and receive updates about participating in new research studies. Learn more about registries.
Why do some people have more polychondritis than others?
In polychondritis, it’s possible that a triggering event, perhaps an infection, sets off a reaction by the immune system, which unleashes an attack on the body’s cartilage. Some people may have a genetic makeup that makes them more prone to this. The disease does not seem to run in families.
What kind of surgery is needed for polychondritis?
However, the role of these agents in treating polychondritis remains uncertain. Tracheal surgery or stenting and treatment of any accompanying infection also are options to be considered in some cases. Surgery to repair an injured part of the trachea is a major operation.