Is there a clinical research network for dystonia?

Is there a clinical research network for dystonia?

The Dystonia Coalition is a clinical research network for dystonia created with support from NINDS and the NIH Office of Rare Disease Research as part of the Rare Disease Clinical Research Network. For more information on the clinical studies and patient registry established by the Coalition, see https://www.rarediseasesnetwork.org/cms/dystonia.

Which is the best treatment for dopa responsive dystonia?

Dopa-responsive dystonia (DRD) is a specific form of dystonia that most commonly affects children, and often can be well managed with levodopa. Deep brain stimulation (DBS) may be recommended for some individuals with dystonia, especially when medications do not sufficiently ease symptoms or the side effects are too severe.

What kind of movements do people with dystonia have?

Dystonia is a disorder characterized by involuntary muscle contractions that cause slow repetitive movements or abnormal postures. The movements may be painful, and some individuals with dystonia may have a tremor or other neurologic features.

How does home care work for children with cerebral palsy?

Home health care for children with Cerebral Palsy varies with need. Several individuals may regularly visit members of a household to assist with tasks. In-home health care for children The in-home health care team is comprised of health care workers who provide home health care services for children inside the children’s own home.

How can people with dystonia control their movements?

For example, resting against the wall or placing their hand behind the head can help some people with dystonia control the movements. Other sensory tricks include pressing fingers against the eyes or nose, using a tight headband on the forehead, and placing the hand under the chin.

The Dystonia Coalition is a clinical research network for dystonia created with support from NINDS and the NIH Office of Rare Disease Research as part of the Rare Disease Clinical Research Network. For more information on the clinical studies and patient registry established by the Coalition, see https://www.rarediseasesnetwork.org/cms/dystonia.

Which is more common ataxic cerebral palsy or dystonia?

Dystonia Fact Sheet. Though not as common as spastic cerebral palsy, it’s not as rare as ataxic or mixed CP. What Causes Dyskinetic Cerebral Palsy? Dyskinetic/Athetoid cerebral palsy is caused by damage to the brain’s basal ganglia. The basal ganglia are responsible for submitting messages to the body to help coordinate and control movements.

Home health care for children with Cerebral Palsy varies with need. Several individuals may regularly visit members of a household to assist with tasks. In-home health care for children The in-home health care team is comprised of health care workers who provide home health care services for children inside the children’s own home.