What kind of medical assistance is needed for progeria?

What kind of medical assistance is needed for progeria?

There’s no cure for progeria, but regular monitoring for heart and blood vessel (cardiovascular) disease may help with managing your child’s condition. During medical visits, your child’s weight and height is measured and plotted on a chart of normal growth values.

What should you do if your child has progeria?

A child with progeria isn’t at increased risk of infection, but like all children, is at risk if exposed to infectious diseases. Provide learning and social opportunities. Progeria won’t affect your child’s intellect, so he or she can attend school at an age-appropriate level. Some adaptations for size and ability may be needed. Make adaptations.

What do you need to know about living with progeria?

Living with Progeria General thoughts about daily life Talking to your child with Progeria Dealing with the outside world Siblings Sports Clothing and footwear Religious affiliation Pets Practical accommodations around the house Travel Other thoughts 17. LIVING WITH PROGERIA You are not alone. Families help each other by sharing experiences.

Who was the first person to be treated for progeria?

Because Scullion lived quite long for someone with progeria, researchers are studying his life to help prolong the lives of others with the illness. Did You Know? Devin Scullion was part of the clinical trials for a drug called Lonafarnib, which is the first known effective treatment for progeria.

What kind of medications do you take for progeria?

A daily dose may help prevent heart attacks and stroke. Other medications. Depending on your child’s condition, the doctor may prescribe other medications, such as statins to lower cholesterol, drugs to lower blood pressure, anticoagulants to help prevent blood clots, and medications to treat headaches and seizures.

When does a child with progeria start to age?

Progeria (Hutchinson-Gilford Progeria Syndrome, or HGPS) is a very rare genetic disease that causes children to age rapidly. Children with progeria appear to be healthy at birth but usually start to show signs of rapid aging in the first two years of their life. Most die by about age 13 or 14, although some live into their early 20s.

What should I ask my doctor about progeria?

Don’t hesitate to ask questions. Progeria is a very rare disease, and it’s likely that your doctor will need to gather more information before determining next steps in caring for your child. Your questions and concerns can help your doctor develop a list of topics to investigate.

Are there support groups for people with progeria?

In a support group, you’ll be with people who are facing challenges similar to yours. If you can’t find a progeria support group, you may be able to find a group for parents of children with chronic illness. Other families dealing with progeria.

What does progeria stand for in medical category?

Progeria (pro-JEER-e-uh), also known as Hutchinson-Gilford syndrome, is an extremely rare, progressive genetic disorder that causes children to age rapidly, starting in their first two years of life. Children with progeria generally appear normal at birth.