Can you stop Parry-Romberg syndrome?

Can you stop Parry-Romberg syndrome?

Problems with the retina and optic nerve may occur when the disease surrounds the eye. There is no cure and there are no treatments that can stop the progression of Parry-Romberg syndrome. Reconstructive or microvascular surgery may be needed to repair wasted tissue.

Is Parry Romberg an autoimmune disorder?

Parry Romberg syndrome is a rare disorder characterized by slowly progressive deterioration (atrophy) of the skin and soft tissues of half of the face (hemifacial atrophy), usually the left side. An autoimmune mechanism is suspected, and the syndrome may be a variant of localized scleroderma.

Are you born with Parry-Romberg syndrome?

The disease is acquired, meaning it’s not an inherited condition or present at the time of birth; it develops after birth. Typically, the syndrome begins in childhood or young adulthood, and, most commonly, the facial atrophy occurs on the left side of the face.

Who diagnoses Parry Romberg?

How is Parry-Romberg syndrome diagnosed? Doctors at Boston Children’s Hospital are able to diagnose this disease based on: a detailed review of your child’s complete medical history. an extensive physical examination, looking for signs of progressive loss of skin, fat, muscle, and bone.

Does Parry Romberg affect the brain?

Between 10-20% of individuals with Parry-Romberg syndrome may have changes on brain MRI scans. These changes can include atrophy of the brain on the same side as the facial changes, and sometimes inflammation within the brain itself.

What causes Romberg Disease?

Parry-Romberg syndrome is more common in girls. The cause of this disease is still unknown. Some factors thought to cause this disease include: viral or bacterial infections.

How rare is Parry Romberg Syndrome?

Physicians studying the disorder have estimated that Parry-Romberg may affect as many as 1 in 250,000 people in the general population.